Our Patients and Families online hub is live!
On May 28 we were joined by workforce, industry, patients and professionals for a webinar launch, celebrating our biggest step yet in creating trusted patient information.
Our mission is simple but not easy: to provide trusted, accredited PIF TICK resources and support for any and every UK adult who has radiotherapy – whether they started their treatment last week, last year or a decade ago. Every year we have 160,000 courses of radiotherapy given in the UK and we know people have very varying experiences.
Those experiences, sometimes very literally, leave a mark. And we know that the information people get can have a real impact on their health, wellbeing and outcomes.
VIDEO: Watch the launch
Trusted information to combat misinformation
For the launch we welcomed some fantastic guest speakers.
Sophie Randall, Director of the Patient Information Forum
Sophie talked about the PIF TICK accreditation criteria and the growing need to fight misinformation with trusted resources.
Timecode: Watch Sophie from 8minutes 40seconds.
Andy Tudor, Trustee and Patient Advocate for Radiotherapy UK
Andy shared his experience of helping the charity create resource and talked about the importance of patient-centred information.
Timecode: Watch Andy from 21minutes 38seconds.
Naman Julka-Anderson, Senior Therapeutic Radiographer and co-founder of the Rad Chat oncology podcast and website
Naman spoke about the importance of tackling health inequalities within patient resources, using inclusive language for radiation skin reactions, and our Ambassadors’ Network.
Timecode: Watch Naman from 28minutes 40seconds.
With thanks to our supporters
Our heartfelt thanks for our funders and supporters: AstraZeneca, OpenWorks, FlenHealth, Amethyst Radiotherapy, Vertual, LocalIQ, bClear, everyone who took part or donated to Miles4Radiotherapy 2023, our volunteers, patient and clinical engagement groups, information reviewers, the team at the Patient Information Forum, and the other charities that have supported this work, and many more wonderful supporters.
Help spread the word
Please get in touch if you want to know more about our work:
