Cervical cancer: Understanding late effects of radiotherapy
Late side effects may happen a few months or years after treatment. They might happen once, carry on over the long term or come and go. Sometimes they cannot be cured, but it might be possible to manage them.
You might have late effects not listed here, because everyone is different. They may also be caused by a different part of your cancer treatment. It is not possible to predict if you will get them and when they might happen, which can be difficult to come to terms with. Research and support for late effects of radiotherapy is growing.
Joining a support group can be a positive way to share your experiences, feel less alone, and come to terms with the physical and emotional impact of treatment. Ask your clinical team if you need more support or have any late effects at all.
This page looks at late side effects.
How likely am I to get late side effects?
Before treatment you will discuss and sign a consent form with your clinical oncologist or therapeutic radiographer. They will tell you what to expect, and you can ask questions and discuss any concerns you have about late effects.
You can click here to see different tumour site consent forms for radiotherapy. These consent forms are packed with useful information about early and late side effects.
When you consent to treatment, you are saying you understand that you have a chance of getting late side effects. Your team will use words like Expected, Common, Less Common and Rare.
This table shows what these words mean.
| Wording on the consent form | % chance of side or late effect | How many patients will get this? |
|---|---|---|
| Expected | 50 to 100% | Between half and all patients |
| Common | 10 to 50% | Up to half of all patients |
| Less common | Less than 10% | Fewer than one in ten patients |
| Rare | Less than 1% | Fewer than one in 100 patients |
Possible late side effects
- Effects on the bladder: Sometimes, the bladder can become smaller after radiotherapy. This means you might need to wee more often in the long term.
If your bladder works well before treatment, this is less likely to be a problem.
- Effects on the bowels: Your bowels might change after treatment. You might feel the need to use the toilet more often or have constipation.
- Cancer-related fatigue: You might find you still have fatigue after your treatment has finished. For some people this can go on for months or years.
- Sexual problems: You might experience narrowing of the vagina and dryness that can make penetrative sex uncomfortable.
- Early menopause: Your period might stop earlier than usual, and you might go through an early menopause.
- Infertility: You might not be able to have children after the treatment. Please let your Consultant know at the earliest time point about your plans for having children and they can advise accordingly.
- Lymphoedema: You might have swelling in the legs or lower body due to fluid buildup.
Rare or less common late effects
- Bowel blockage: There’s a small chance your bowel might get blocked, which can cause stomach pain and trouble with bowel movements.
- Pelvic Fracture: Radiation can weaken the bones in your pelvis and make them more likely to break.
- Second Cancer: There is a very small chance that you could develop another type of cancer. This small risk is also from all the X-rays and scans you have had over your life, and natural exposure to radiation around us. The chance of this happening is about 0.5 – 1% over 10 years.
What can help with these late effects?
- Keeping active: Gentle movement can help you feel better, both during and after treatment. Your treatment team can tell you what is safe for you to do.
- Bladder care: Keep drinking water and talk to your doctor if you have trouble with weeing.
- Bowel health: Professional advice on what food and drink to have can help. So can medication. Speak to your treatment team about any bowel changes and watch for any signs of blockage.
- Sexual health: Use lubricants for dryness, talk to your treatment or clinical team about what products are recommended and any discomfort you may have. You may be able to use dilators to help make penetrative sex more comfortable.
- Menopause and infertility: Your medical team can help with symptoms of early menopause. Please let your Consultant know at the earliest time point about your plans for having children and they can advise accordingly.
- Managing lymphoedema: Special exercises and treatments can help reduce swelling. Ask to speak to a lymphoedema specialist if this is happening to you.
- Monitoring rare side effects: Talk to your treatment team as soon as you notice any changes, this can help catch and treat any serious problems early.
- Managing cancer-related fatigue: Food and drink, keeping active, keeping a fatigue diary, medicine like steroids and physiotherapy may all be options for managing fatigue. Speak to your doctor or clinical team for advice.
- Drinking fluids: Drinking plenty of fluids such as water and squash can help with fatigue and tiredness caused by your treatment. It can also help flush out toxins in your body caused by treatment. You can try diluted juice if you don’t like water, but remember fizzy drinks and fruit juice often have lots of sugar in them.
- Skin care: The skin in the treatment area will always be more sensitive to the sun. Always protect it by covering up and use a high factor sunblock.
Always talk to your doctor or treatment team about any late effects you have. Even if they are not mentioned here. Everyone is different and experiences treatment differently. There may be ways they can help you reduce or manage symptoms.
Further information
Learn more about sex and cancer here:
Pelvic radiotherapy for women | Sexuality and cancer | Cancer Research UK
Sex and cancer | Impact on your sex life and relationships | Macmillan Cancer Support
Learn more about side effects and support here:
Pelvic Radiation Disease Association
Learn more about radiotherapy consent forms here:
https://www.rcr.ac.uk/our-services/management-service-delivery/national-radiotherapy-consent-forms/
Learn more about radiation skin reactions here:
Learn more about managing cancer fatigue:
